Many of us will experience incontinence at some point in our lives. Here you can read about some of the work Dani has been part of to help us bring this topic out of the shadow of the toilet cubicle and into the light.
Children and their caregivers’ experiences with incontinence (Uganda and Bangladesh) (including details on the development of a new disability-inclusive framework for children in emergency contexts)
Improving the lives of older people with incontinence (Ethiopia and Malawi)
Breaking the silence on incontinence
Guidance on supporting people with incontinence
Toilet truths: An energiser activity for developing empathy with those being asked to discuss their incontinence.
Incontinence: We Need to Talk About Leaks: basic introduction to incontinence and the realities that people living with incontinence face; practical suggestions for how to identify and engage with people living with incontinence to start ‘talking about leaks’; and practical suggestions for the WASH sector (and others) to contribute to reducing inequalities associated with incontinence.
How to Talk About Incontinence: A Checklist
Guidance on supporting people with incontinence in humanitarian and low- and middle-income contexts (LMICs): an explanation of what incontinence is, who might experience the condition, and how incontinent people and their carers in LMICs (including humanitarian contexts) can be supported to manage the condition (or see summary guidance)
Case studies: a compilation of case studies related to incontinence in low- and middle-income countries (LMICs), including in humanitarian contexts; and
References: websites, peer-reviewed literature and grey literature related to incontinence in low- and middle-income countries (LMICs).
2022 Hear from 5 grantees striving for better health outcomes for refugees (first example), Elrha Blog
2022 Conducting research with children: Developing the story book methodology. Elrha blog
2022 Conducting research with children: Honouring a child’s right to be heard. Elrha blog
2019 Breaking the silence on women’s experiences of incontinence. University of Leeds
2017 Why we need to talk about incontinence. The Conversation
2023 Understanding children’s experiences of self-wetting in humanitarian contexts: An evaluation of the Story Book methodology, PLOS Global Public Health (available 15th May 2023)
2021 Measuring the prevalence of urinary incontinence in children aged five to 12 in an emergency setting: lessons learned in Tukaley, Ethiopia. Waterlines
2021 CHILD-SAN: a new disability-inclusive framework for emergency sanitation for children aged five to 11, based on a systematic review of existing guidance. Journal of International Humanitarian Action
2018 Incontinence in Zambia: Understanding the coping strategies of sufferers and carers. Waterlines
2023 Understanding Children’s Experiences of Self- wetting (incontinence) in Humanitarian Contexts (PDF of slides – you can also download the slides with audio – approx. 12 mins – from here), Water and WASH Futures Conference
2022 How to better understand the experiences of children who wet themselves (PDF of slides), Colorado WASH Systems Symposium
2022 CHILD‑SAN: a new disability‑inclusive framework for emergency sanitation for children aged five to 11, based on a systematic review of existing guidance (poster), Colorado WASH Systems Symposium
2022 Understanding children and their caregivers’ experiences with incontinence in humanitarian contexts (link to video, also embedded below. Our work is presented from 35-42 minutes), WASH Cluster Hygiene Promotion Technical Working Group Speaker Series, UNICEF